In doing some research on Neurofibromatosis, I found a great website. www.reggiebibbs.com . Reggie Bibbs is from the Houston area and sees the same neurologist Hayden does. He has a great website for awareness and has some awesome T-shirts for sale. Check it out.
I am a working mom of 2 busy boys and one crazy husband. Spend most of my time when I am not working as a nurse things with my family. We are very involved in our boys lives from school, church to sporting events.